Telephone Numbers and Contact information
Phone #:(203) 746-6518 Mary Dunkle/ Sr. Dir.of Communications
Phone #:(800) 999-6673 Abbey S. Meyers / Ex. Director
Phone #:
Phone #:
Phone #:
Fax Number:(203) 746-6481' ;

Web Page:  www.rarediseases.org
E-mail to:   orphan@rarediseases.org

Program Details:
Operating Agency: National Organization for Rare Disorders (Private, Non-Profit)
Person In Charge: President:Abbey S. Meyers
Hours: Monday - Friday 9:00 a.m. - 5:00 p.m. Eastern Time
Eligibility: None
Fees: First report free/ $7.50 each there after
Intake Process: Telephone
Program Licenses:
Staff Qualifications:
Service Area: Nationwide
Handicap Accessibility:

Program/Service Notes:
Provides information of over 1,100 rare diseases written in understandable language. Referral to specific disease organizations and support groups as well as to local community resources.

This information was last updated on 03/09/2005

This information is provided as is with no guarantee as to the accuracy of the information. Information is considered to be accurate as of the date of the last update, printed above. United Way 211   may not be held liable for misuse of this information.


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