Telephone Numbers and Contact information
Phone #:(612) 869-5693 Mary Tietz
Phone #:(800) 246-2436 Testing
Phone #:
Phone #:
Phone #:
Fax Number:(612) 866-3222' ;

Web Page:  www.lowesyndrome.org
E-mail to:   info@lowesyndrome.org

Program Details:
Operating Agency: LOWE Syndrome Association (Private, Non-Profit)
Person In Charge: Agency Executive Director:Kay McSpadden
Hours: Monday - Friday - 8:00 am - 8:00 pm
Eligibility: Parents of LS children/ Educators/ Organizations/ Relative
Fees: Donations accepted/$15 membership fee
Intake Process: Telephone
Program Licenses:
Staff Qualifications:
Service Area: Nationwide
Handicap Accessibility:

Program/Service Notes:
To provide information about Lowe Syndrome, to foster communication among families, and support research. Lowe syndrome is a rare genetic condition affecting males that results in multiple handicaps and serious health problems. There is no cure, but symptoms can be effectively treated. Lowe syndrome is also known as ocul-cerebrorenal (OCRL) syndrome. Tests can be arranged by calling 1-800-246-2436. Information and membership in LSA from the above number.

This information was last updated on 04/25/2005

This information is provided as is with no guarantee as to the accuracy of the information. Information is considered to be accurate as of the date of the last update, printed above. United Way 211   may not be held liable for misuse of this information.


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